Helen's Journey

This morning I woke feeling defeated. I have been struggling with Helen to wear her eye glasses for some time now. It has become a daily battle to keep them on compared to when she use to love wearing them. I have no clue what changed her mood towards her "Pretties" which is what we call her glasses. When I went to log on my Facebook this morning I noticed a story instantly popped up from the Today Show. It was a story about a mother (same age as me) who also has a son who wears glasses and patches. I was glued to her story and no longer felt alone. Because lets face it, you don't see many babies or young toddlers with glasses. Almost everything I read from her story hit home; Her experiences with public and so on. I believe God made sure her story was visible to me this morning with no doubt.
http://eyepowerkidswear.com/cart/index.php

Helen's eye story....

It was one of those check ups as a parent you will never forget. Everything was going smoothly. She was right where she should be at for motor skills and growth even though she is small. Then I was questioned if I ever noticed anything odd with her right eye by her pediatrician. Of course my response was no. Honestly I have never noticed anything out of the ordinary with her eyes let alone anyone els. Her pediatrician then explained to me what she was seeing with her eyes and described it the best way to me as a parent. You know the medical terms can be difficult to understand sometimes when your not a Doctor. 


A couple weeks later we had her first appointment with the pediatric ophthalmologist. We were told there is definite Esotropia in her right eye. Is simple terms Esotropia is when one eye goes cross-eyed while the other eye is still focusing strait. Once it was brought to our attention and we explained it to our family members it was definitely noticeable. I started to feel ashamed as a parent that I couldn't notice her eye before it was brought to my attention. After her first appointment we ordered her glasses.  The only time I saw glasses for babies was honestly on Teen mom. Yes I use to watch that show. 

For the first couple months Helen had to wear just her glasses 24/7 except when she was sleeping of course. It was an easy start from there. She loved wearing them. She soon learned how to put them on herself. She knew when the lens would get dirty and let us clean them. We were all surprised how well she was doing wanting to wear her glasses and I thought to myself it was going to be a breeze. Little did I know what I was about to endure.


The next check-up soon approached. There was a little improvement. Pretty much any improvement is good news. But not enough, therefore that's when she had to start wearing her eye patch. She has to wear her patch for 2 hours everyday. My first thought was, she is not going to wear these. Sure enough I was correct. She cried and when it was time to remove the patch, I felt horrible. It is almost like taking a bandaid off. let alone trying to get her to let us put the patch on her eye. 

Two months later another eye check-up approached again. Just like her last there were some improvement but not enough. We were told to continue what we are doing. At her next eye check-up we will discuss with the other eye Doctors what direction we need to take. Surgery to correct it or continue what we are doing for another 2 months. That is not the kind of news you want to hear as a parent. The word surgery for any of my daughters makes me very nervous. Time will only tell. 


The struggles are a daily basis. Trying to keep them on her let alone even getting her to wear them on certain days. Going out in public was a learning curve. People stare, but I don't blame them. As I mentioned previous you don't see babies or young toddlers with glasses often. It was just awkward and still can be. I get questioned often if they are real glasses. Of course they are. Why would I make my kid wear fake glasses? There is not a day that goes by without me thinking about her glasses or the possibility of surgery. It scares me, makes me nervous as a parent. But from here all we can do is our best and pray that God is on our side and will help guide us through this journey. 

We are thankful that Helen's sisters, family and our neighbors are amazing supporters. 









7 comments

Jenny said...

Praying that there is big improvements and she can go without surgery! It is very scary when your child is going through anything. Thank you for linking up with Favorite Thing! My husband had something similar to your daughter and he didn't get glasses until elementary school...by the time he got them it was a big struggle for him and he was already suffering the consequences. It is nice that now they catch these things early! and that you have a plan of action at a young age. Not that it takes the scariness and worrying away! Praying for your little girl!

Kaitlyn Hoffman said...

Thank you so much! We are blessed to have a great pedi. for our girls. And even more blessed that they were able to catch it so young! Thank you!

Areeba said...

I hope everything will get better soon. She's a lovely little girl ;) Cheers for a strong momma!

Linda said...

What a little beauty!
Our 2nd daughter was diagnosed with the same thing. It was her left eye. She started wearing glasses at age 15 months, and it was a bit of a struggle. Fast forward and now she is a grown up married lady expecting her first baby! She did have surgery at 19 months, we used patches and continued to wear glasses, but her left eye did not respond well to treatment, and so she really does not see with that eye. She wears contact lenses now, and has a little difficulty with depth perception, but has a wonderful, happy life!
Hang in there, Mom, you are doing a great job!
(stopping by from Aloha Friday)

Anonymous said...

Hola Kaitlyn!
I think she looks adorable! Hope everything works out. Just keep doing what you are doing...loving her. I will have her in my prayers. Thanks for linking up.

~SimplyyMayra :)
PonderWonders @ www.simplyymayra.com

Unknown said...

Chad's mom has an eye condition (I forget the name) and is basically blind now. Its genetic, but we had Braylon tested at just a few months. Luckily they didnt see anything! Stay strong, remember God doesnt give us what we cant handle :)

Unknown said...

Praying for her.